Health Related Advocacy

Works to prevent kidney and urinary tract diseases, improve the health and wellbeing of individuals and families affected by these diseases, and increase the availability of all organs for transplantation.

Services Include:

• Patient services
• Free kidney screenings
• Medical research
• Professional education
• Public education

• Organizational Consultation/Technical Assistance
• Government Reform Groups
• Public Awareness/Education

Find the nearest CHC location here: http://www.auch.org/community-health-centers/chc-profiles
Community Health Worker Program employs 5 CHWs who are based out of Community Health Centers in high-need areas across the Salt Lake Valley.

• Specialized Information and Referral
• Health Related Advocacy Groups
• Braille and Tactile Aids
• Voluntary Health Organizations

NFB of Utah has 5 chapters located in St. George, Utah County, Salt Lake, Weber/Davis, and Logan; as well as 3 divisions that work specifically with students, seniors, and parents of blind children.
President Everette Bacon

• Glasses/Contact Lenses
• Voluntary Health Organizations
• Health/Disabilities Related Volunteer Opportunities
• Eye Screening
• Glasses Donation Programs

• Disease/Disability Information
• Voluntary Health Organizations
• Non-Emergency Medical Transportation
• Health/Disabilities Related Volunteer Opportunities
• Smoking/Vaping Cessation
• Court Ordered Community Service Sites
• Health/Disability Related Support Groups

A voluntary health organization that advances groundbreaking medical research, spreads lifesaving knowledge, and reaches out to people of all ages about cardiovascular disease and stroke, and offers first aid instruction. Related volunteer opportunities available.COVID-19 UPDATE: Following all CDC and state guidelines. Masks are required regardless of vaccination status.

• First Aid Instruction
• Health/Disabilities Related Volunteer Opportunities
• Voluntary Health Organizations

Provides education, advocacy, outreach, and networking for people with bleeding disorders. These services empower individuals with bleeding disorders and their families to lead healthier and more self-sufficient lives.

• Legal Services Volunteer Opportunities
• Legal Information Services
• Legal Representation
• Protection and Advocacy for Individuals With Disabilities
• Housing Discrimination Assistance
• Patient Rights Assistance
• Specialized Information and Referral
• Adult Protective Services
• Disability Rights Groups
• Advocacy
• Mediation

A voluntary health organization that provides services to help mothers have full-term pregnancies and research the problems that threaten the health of babies, through public awareness and education, general expectant and new parent assistance, and related volunteer opportunities.COVID-19 UPDATE: Following all CDC and state guidelines.

• Public Awareness/Education
• Health/Disabilities Related Volunteer Opportunities
• Voluntary Health Organizations
• General Expectant/New Parent Assistance

• Court Ordered Community Service Sites
• Teaching/Instruction Volunteer Opportunities
• General Mental Health Information/Education
• Counseling/Information Support Volunteer Opportunities
• Specialized Information and Referral
• Public Awareness/Education
• Advocacy
• Mental Health Related Support Groups
• Suicide Prevention Programs
• Voluntary Health Organizations

Affiliate programs located throughout the state, including Salt Lake, Utah County, Southwest, Cache Valley, Davis. See website for contact information.

• Health/Disability Related Support Groups
• Health/Disabilities Related Volunteer Opportunities
• Voluntary Health Organizations
• Health Related Advocacy Groups
• Disability Related Sports

A voluntary health agency that works to combat muscular dystrophy, amyotrophic lateral sclerosis (ALS), and related muscle-debilitating diseases, and is committed to finding treatments and cures while supporting a comprehensive program of direct patient services and clinical care. Also provides assistive technology, support groups, therapeutic camps and offers volunteer opportunities.

• Voluntary Health Organizations
• Health/Disabilities Related Volunteer Opportunities
• Assistive Technology Expense Assistance
• Therapeutic Camps
• Health/Disability Related Support Groups

Clinical care at Clinical Neurosciences Center, University of Utah Medical Center

• Disease/Disability Information
• Health/Disability Related Support Groups
• Voluntary Health Organizations
• Health Related Advocacy Groups
• Stroke Rehabilitation

• Health Related Advocacy Groups
• Disease/Disability Information
• Specialized Information and Referral

The UBHPAC is a group of individuals who support and advocate for services for consumers of public behavioral health services by planning and advising the Division of Substance Abuse and Mental Health.

The UBHPAC is an open, public meeting supported by DSAMH, and is regularly held on the first Thursday of each month at the State Office in Salt Lake City.

• Advocacy
• Navigator Programs
• Health Related Advocacy Groups
• General Health Insurance Information/Counseling

• Disease/Disability Information
• Health/Disabilities Related Volunteer Opportunities
• Voluntary Health Organizations

Provides support and health/disability related support groups to individuals and families affected by Tourette Syndrome. Serves as a resource for individuals who have Tourette Syndrome and their families. Tourette syndrome is a neurodevelopmental disorder evident in early childhood or adolescence characterized by motor and vocal tics. Co-occurring conditions are Attention Deficit Hyperactivity Disorder (ADHD) and Obsessive Compulsive Disorder (OCD). The Salt Lake City Tic Clinic is located at the University of Utah. COVID-19 UPDATE: Following all CDC and state guidelines.

• Health/Disability Related Support Groups
• Voluntary Health Organizations

Heather Allred, Chairperson

• Health/Disability Related Support Groups
• Health Related Advocacy Groups
• Voluntary Health Organizations
• Specialized Information and Referral

The Utah Autism Initiative (UAI) committee is a state inter-agency advisory panel of experts in the field of ASD-related research and treatment. UAI is formed solely to benefit the citizens of Utah affected by or having an interest in ASD. 

Through the Autism Systems Development Program, the CSHCN Bureau provides leadership that brings together many of the agencies and advocates who influence the statewide system of services for children with autism spectrum disorder (ASD) and their families.

The program has four components: Utah Autism Initiative (UAI), Utah Registry of Autism and Developmental Disabilities (URADD), Data System Integration, and ASD Resource Management. The ASDP:
- Refers individuals with ASD to services for evaluation and treatment
- Refers to care coordination programs
- Updates ASD diagnostic providers list
- Updates ASD treatment resources list
- Expands previously conducted ASD services survey to assess service needs and identify
barriers for care across Utah
- Compiles annual report summarizing ASD needs in Utah

See related report at https://www.cdc.gov/ncbddd/autism/states/addm-utah-fact-sheet.pdf. 

Colin Kingsbury, Program Manager
M - F 8 - 5
Statewide

• Disease/Disability Information
• Health/Disability Related Support Groups
• Voluntary Health Organizations
• Health/Disabilities Related Volunteer Opportunities
• Court Ordered Community Service Sites
• Health Related Advocacy Groups

Region includes Colorado, Montana, Utah and Wyoming.

• Voluntary Health Organizations
• Internet Information Resources
• Specialized Information and Referral
• Disease/Disability Information

• Health/Disability Related Support Groups
• Non-Emergency Medical Transportation
• Voluntary Health Organizations
• Therapeutic Camps
• Health Related Advocacy Groups
• Prescription Drugs for Specific Health Conditions
• Disease/Disability Information
• Independent Living Skills Instruction
• Health/Disabilities Related Volunteer Opportunities

Provides objective and credible information, advocacy and research for diabetes. Website offers education, legal rights, health insurance, tips for caregivers, etc. Provides camps for children with Type I diabetes and with or at risk of developing Type II diabetes.

Provide support, resources, education, and advocacy for those who are impacted by low vision and visual impairment.

Promotes quality of life for people with ostomies and continent diversions through information, support, advocacy, and collaboration. Hosts a national network for bowel and urinary diversion support groups in the United States. 

Provides ongoing peer-to-peer support, education, and advocacy to heart patients and their families. Local chapter locator available on website.

Services Include:

• peer support and education
• education resources
• hospital outreach
• CHD awareness
• community health education
• online community
• advocacy

Pursuing recognition, policy and solutions for the surging population of individuals, families and caregivers affected by severe forms of autism and related disorders.

Services Include:

• Education to the public
• Platform for policy discourse and services
• Education for policy makers
• Promote research
• Promote awareness and acceptance

Provides support for individuals with genetic aortic and vascular conditions, including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes.