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Caring for Your Child & Family Learning About Diagnoses & Conditions

Learning About Diagnoses & Conditions Angelman Syndrome Anxiety Disorders Arginase Deficiency Asthma Attention Deficit Hyperactivity Disorder ADHD Autism Spectrum Disorder Biotinidase Deficiency Celiac Disease Cerebral Palsy Childhood Absence Epilepsy Childhood Obesity Constipation Cornelia de Lange Syndrome Cystic Fibrosis Depression Down Syndrome Duchenne & Becker Muscular Dystrophy Fabry Disease Fatty Acid Oxidation Disorders- MCADD_LCHADD_VLCADD)Fetal Alcohol Spectrum Foster Care Fragile X Syndrome Galactosemia Headache Hearing Loss & Deafness Homocystinuria Infantile Spasms Inflammatory Bowel Disease Intellectual Disability Leukodystrophy Maple Syrup Urine Disease_MSUD Mucopolysaccharidosis Type I_MPS I Myotonic Muscular Dystrophy Neonatal Opioid Withdrawal Syndrome_NOWS Neurofibromatosis Type 1 Phenylketonuria PKU POTS Prader-Willi Syndrome Premature Infant Follow-Up Rett Syndrome Seizure Disorders Spina Bifida Spinal Cord Injury Spinal Muscular Atrophy Tourette Syndrome Transgender & Gender-Diverse Youth Traumatic Brain Injury Tuberous Sclerosis Complex Turner Syndrome 22q11.2 Deletion Syndrome XXY Syndrome

Healthcare Terms & Acronyms Finding Quality Information

Finding Quality Information Using Health-Related Social Media

Understanding Healthcare Problems

Understanding Healthcare Problems Before a Diagnosis After a Diagnosis or Problem is Identified

Family Support

Family Support A New (or Old) Diagnosis - You Are Not Alone Taking Care of Yourself & Your Family

Taking Care of Yourself & Your Family Caring for Yourself Caring for Your Marriage or Relationship Caring for Your Other Children Caring for Your Family & Friends Tips for Single Parents of Children With Special Needs Fathers of Children with Special Needs Respite Care Spiritual Needs

Funding Your Childs Special Needs

Funding Your Childs Special Needs Appealing Funding Denials Financing Your Childs Healthcare Understanding Your Health Insurance Services for the Uninsured & Under-insured Understanding the Affordable Care Act (ACA) & the Health Insurance Marketplace

Legal Issues

Legal Issues Laws to Know

Laws to Know HIPAA/FERPA

Accounts, Trusts, & Estate Planning Guardianship End of Life Issues When Parents of Children with Disabilities Divorce

Support Groups Personal Stories

Personal Stories Things I Wish I Had Known Change it Anyway Thoughts From a Single Parent of a Great Kid I Can Play Advocating for My Daughter Building New Hopes & Dreams Cycling & Perseverance A Parent Perspecive on Dealing With Ignorance Welcome to Holland

Life Transitions with Your ChildMeeting Your Childs Needs

Meeting Your Childs Needs Early Childhood Services

Early Childhood Services Early Intervention Part C Program Additional Early Services Home Visiting Services

Caring for Children with Special Health Care NeedsCommon Problems

Common Problems Constipation Nutrition Pain Skin Care Sleep

Emotional, Behavioral, & Mental Health

Emotional, Behavioral, & Mental Health The ABCs of Behavior Behavioral Therapies Depression Anxiety Disorders Eating Disorders Music Therapy Service Animals & Pet Therapy Trauma Treatment Models & Ratings

Addressing Bullying Social Issues & Opportunities Recreation Activities Education & Schools

Education & Schools Education FAQ Forms for Education School Options Special Education & Accommodations

Special Education & Accommodations Special Education Laws & Process Individualized Education Plan (IEP)504 Plan IEP & 504 - What is the Difference Medical Needs at School

Adaptive/Assistive Options

Adaptive/Assistive Options Adaptive Cycling Adaptive Driving Adaptive Play & Assistive Technology Adaptive Skiing Augmentative Communication_AAC Hearing Aids Home Retro-fits Switches Wheelchairs & Adapted Strollers

Wish Granting Groups

Working with Providers

Working with Providers After a Diagnosis or Problem is Identified

After a Diagnosis or Problem is Identified Partnering with Healthcare Providers Assistance in Choosing Providers

Assistance in Choosing Providers What Choices Does Your Insurance Offer Choosing a Primary Care Clinician Choosing a Subspecialist Choosing a Therapist Choosing a Mental Health Provider Choosing a Complementary & Alternative Medicine CAM Provider Choosing a Dentist

Choosing a Dentist Dental Care Levels for CSHCN

Working with Outside Caregivers

Physicians & Professionals Providing a Medical Home

Providing a Medical Home The Patient-Centered Medical Home Coding & Billing

Coding & Billing Coding for Developmental & Mental Health Screening Optimal Clinical Coding for CYSHCN

About Children & Youth with Special Health Care Needs CYSHCN Care Coordination

Care Coordination Questions & Answers about Care Coordination Family-Centered Care Coding & Billing for Care Coordination Working with Insurance Companies Care Coordinators as Family Advocates Resources for Care Coordinators

Care Coordination in Portal Partner States

Care Coordination in Portal Partner States Care Coordination in New Mexico Utah Children's Care Coordination Network

Utah Children's Care Coordination Network Resources of the Month 2020 Resources of the Month 2019 Resources of the Month 2018 Resources of the Month 2017

Pediatric Mental Health Care Access Program

Pediatric Mental Health Care Access Program Montana Access to Pediatric Psychiatry Network_MAPP-Net

Montana Access to Pediatric Psychiatry Network_MAPP-Net Project ECHO at Billings Clinic Project ECHO Archive 2019 Project ECHO Archive 2020 Project ECHO Archive 2021

Nevada Pediatric Mental Health Care Access Program (PMHCAP)Rhode Island Pediatric Psychiatry Resource Network (PediPRN)

Common Issues for CYSHCN

Common Issues for CYSHCN Acute Flaccid Myelitis Bronchopulmonary Dysplasia CBD for Neurologic Conditions in Children Congenital Diaphragmatic Hernia (CDH)Contraception & Menstrual Management Cranial Deformation & Craniosynostosis Developmental Coordination Disorder Drooling in Children with Special Health Care Needs Gastroesophageal Reflux Disease Integrative Medicine for CYSHCN Neonatal Opioid Withdrawal Syndrome (NOWS)Oral Health Osteoporosis & Pathologic Fractures Pain in Children with Special Health Care Needs Procedural Anxiety Puberty & Pubertal Variations Self-injurious Behavior Sensory Processing/Integration Disorder Sexuality & Children with Disabilities Skin & Wound Care for CYSHCN

Skin & Wound Care for CYSHCN Care of Surgical Wounds in Children Caring for Burn Injuries in Children Ostomy Care Treating Diaper Rash

Sleep Issues

Sleep Issues Behavioral Techniques to Improve Sleep Medical Conditions Affecting Sleep in Children Sleep Disorders & Parasomnias in Children Sleep Medications

Somatic Symptom Disorder & Functional Neurologic Disorders Syncope Toe-Walking Toilet Training for CYSHCN

Education & Schools

Education & Schools Attention-Deficit/Hyperactivity Disorder (ADHD) for Educators School Accommodations: IEPs & 504s Specific Learning Disability

Feeding & Nutrition

Feeding & Nutrition Calcium & Vitamin D Feeding & Swallowing Problems in Children Feeding Tubes & Gastrostomies in Children Formulas

Formulas Formula Funding

Guidelines & Algorithms

Guidelines & Algorithms Health Supervision & Clinical Practice Guidelines Evaluation for Suspected Ehlers-Danlos Syndrome Evaluation of Developmental Delay

Medical Technology

Medical Technology CPAP & Bilevel PAP Home Ventilators Tracheostomy

Screening & Prevention

Screening & Prevention Autism Screening Childhood Lead Exposure Childhood Obesity Screening & Prevention Dental & Oral Health Screening Developmental Screening Hearing Screening Infant & Early Childhood Social-Emotional Screening Maternal Lead Exposure Mental Health Screening for Children & Teens Postpartum Depression Screening Screening for Eating Disorders Screening for Sleep Problems Toxic Stress Screening

Transition Issues

Diagnoses & Conditions

Diagnoses & Conditions Diagnosis Prevalence List Other Names for Diagnoses & Conditions Anxiety Disorders & Attention Deficit Hyperactivity Disorder (ADHD)Angelman Syndrome Anxiety Disorders Arginase Deficiency Asthma Attention-Deficit/Hyperactivity Disorder (ADHD)Autism Spectrum Disorder Biotinidase Deficiency Celiac Disease Cerebral Palsy Charcot-Marie-Tooth Disease (Hereditary Motor Sensory Neuropathy)Childhood Absence Epilepsy Constipation Cornelia de Lange Syndrome Cystic Fibrosis Depression Duchenne & Becker Muscular Dystrophy Down Syndrome Fabry Disease Fetal Alcohol Spectrum Disorders Foster Care Fragile X Syndrome Galactosemia Headache (Migraine & Chronic)Hearing Loss & Deafness Homocystinuria Infantile Spasms Intellectual Disability & Global Developmental Delay LCHAD/TFP Deficiency Leukodystrophies Maple Syrup Urine Disease (MSUD)MCADD Mucopolysaccharidosis Type I (MPS 1)Myotonic Muscular Dystrophy Type 1 Neurofibromatosis Type 1 Obesity in Children Obsessive-Compulsive Disorder (OCD)PKU & Pterin Defects Postural Orthostatic Tachycardia Syndrome (POTS)Prader-Willi Syndrome Premature Infant Follow-Up Rett Syndrome Seizures/Epilepsy Sickle Cell Disease Spina Bifida Spinal Cord Injury Spinal Muscular Atrophy Substance Use Disorders Tourette Syndrome Transgender & Gender-Diverse Traumatic Brain Injury Tuberous Sclerosis Complex (TSC)Turner Syndrome 22q11.2 Deletion Syndrome Tyrosinemia Type 1 VLCADD XXY (Klinefelter) Syndrome

Newborn Disorders

Newborn Disorders Efrain Test MCADD Test Adrenoleukodystrophy (ALD)Argininemia Argininosuccinic Aciduria Beta-Ketothiolase Deficiency Biotinidase Deficiency CACT & CPT II Deficiencies Carnitine Palmitoyltransferase 1A (CPT 1) Deficiency Carnitine Uptake Defect Citrullinemia Type 1 Citrullinemia Type II & Citrin Deficiency Congenital Adrenal Hyperplasia Congenital Hypothyroidism Critical Congenital Heart Disease (CCHD)Cystic Fibrosis Fabry Disease Galactosemia Glutaric Acidemia Type 1 Glutaric Acidemia Type 2 Guanidinoacetate Methyltransferase (GAMT) Deficiency Hearing Loss & Deafness HMG-CoA Lyase Deficiency Holocarboxylase/Multiple Carboxylase Deficiency Homocystinuria (Classic)Isobutyryl-CoA Dehydrogenase Deficiency Isovaleric Acidemia LCHAD/TFP Deficiency Malonic Acidemia Maple Syrup Urine Disease Medium-Chain Acyl-CoA Dehydrogenase Deficiency (MCADD)Methylmalonic Acidemias Phenylketonuria (PKU)Pompe Disease Propionic Acidemia Pyruvate Carboxylase Deficiency Severe Combined Immunodeficiency (SCID)Short/Branched Chain Acyl-CoA Dehydrogenase Deficiency Short-Chain Acyl-CoA Dehydrogenase Deficiency (SCADD)-Draft Sickle Cell Disease Spinal Muscular Atrophy 3MCC Deficiency 3-Methylglutaconic Aciduria (3MGA)2M3HBA Deficiency Tyrosinemia Type 1 VLCADD

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